patient data

At the ENGAGE 16 conference in San Diego recently, Eric Topol, Director of the Scripps Translational Science Institute, said we were in the process of “waving goodbye to one-size-fits-all  medicine” – but that the shift could not happen unless patients were to “control their own health data”.

“We are going to be leaving population medicine — where it’s one size fits all — in favour of individualised medicine,” the Scripps cardiologist predicted. This individualisation “infers that patients should drive their own care”, Topol said.

To get there, patients will need to control their own health data, said Topol. He noted that only one state in the US grants citizens legal ownership of their health information; everywhere else in the US, medical offices and health systems control patient records he said. “That’s completely wrong. That has to get fixed,” he said. “It should be your data,” - and went so far as to call patient data ownership “a civil right that’s yet to be granted”.

Read the full story here – Patient data ownership a civil right that’s yet to be granted

Related News

COCIR and SIA launch ID recommendations

A new joint publication, launched at the HIMSS Europe and Health 2.0 Conference, gives critical guidance on the identity challenge facing healthcare
UK e-Health Week

Future of young people in hands of eHealth, says health leader

apps, wearables

Medical devices: a morphing market!