ECCO and CODE unite to improve cancer care in Europe

The Collaboration for Oncology Data in Europe (CODE) and European CanCer Organisation (ECCO) have joined forces on a new project to help improve cancer outcomes measurement across Europe.


According to the World Health Organisation (WHO), 20% of deaths in Europe can now be attributed to cancer.

With more than 3 million new cases and 1.7 million deaths every year, it is the biggest cause of death and morbidity in Europe after cardiovascular diseases.

It is within this context that the European CanCer Organisation (ECCO) and the Collaboration for Oncology Data in Europe (CODE) have embarked on a joint initiative to explore outcomes measurement within cancer care.

“ECCO’s mission is to improve outcomes for cancer patients through the delivery of higher quality cancer care,” says Professor Philip Poortmans, ECCO’s President.

“We are therefore delighted to be working with CODE to better understand which outcomes can be measured accurately today, to explore their value and the associated cost of capturing this data, and to contribute towards the journey to comprehensive outcomes measurement.”

“Innovations in the treatment of cancer are offering increased options and choices for clinicians and patients,” added David Kerr, Professor of Cancer Medicine at the University of Oxford and Chair of CODE’s Clinical and Analytical Steering Committee.

“Valuable work has already been done to define comprehensive outcomes approaches for a number of cancer types by organisations such as ICHOM. However, the systematic evaluation of outcomes that can be generated from the day-to-day clinical setting, particularly outcomes that matter to patients, is still at an early stage due to the complexity of cancer and cancer care. We look forward to working with ECCO on this important project.” 

The research project will explore the value of different outcome metrics, while assessing the clinical insight that can be derived and the feasibility, complexity and challenges associated with sourcing the required information.

It also aims to help inform the understanding of the drivers and challenges of information gathering for outcomes based health systems and recognise what can be achieved with existing real-world datasets.

ECCO and CODE will be capturing insights from interviews with stakeholders from various organisations within the European oncology community to ensure that a wide range of views is included in the project.

The interviews will then be analysed and contribute to a report developed by ECCO and CODE. This will then offer an opportunity for broader engagement and discussion of the research findings, along with additional perspectives on pragmatic outcomes measurement, at the ECCO 2018 European Cancer Summit from 7-9 September 2018.

For more information on the project, please contact Richard Price, EU Policy Affairs Manager, ECCO, at or Julia Levy, External Engagement Lead, CODE at

Tonya Stewart

Related News


German hospital partners on data sharing project

Dr Lennart Jahnke, CDO at Germany's University Medicine Mannheim, talks about a partnership with Siemens to give patients greater access to...

Data projects boost precision medicine in Spain

Precision medicine is giving birth to leading Spanish-based projects that use big data to speed up rare diseases diagnosis

Big data ― big concerns

Find out about what the big issues are at MEDICA 2017